Our 1st Doc Appt in NJ

Me,Mom, and especially Andy had a very long day yesterday. We were in Sloans Basking Ridge branch all morning. When we met out nurse we immediately felt a connection. She was very personable and informative. She gave us a lot of information to read up on and look into. We did not leave her empty handed.

Then Doc Gavrilivick came in and was very straight forward with us,He wanted us to know how andgry Andys cancer really is and what we need to prepare for.
They  have decided that Temedor is the best drug option for now because of the brain penetration.
We asked some very scarry questions

Whats andys life expectancy?
Is there a cure?
Whats going to happen?

He was very honest with us and told us Andys Cancer is the worst...agrressive and angry...  and when the cells grow and form tumors they cover the worst possible places they could.
They're hope is that this drug will stop growth and extend his life and if it shrinks ...THATS A BONUS!

but that worst case scenerio hell be gone in 2 months...best case with treatment and all
3-6 months to live...That this cancer was so rare and dosnt usually grow to the places that Andys has grown...so its all experimental at this point...but that the cancer is covering his spine and brain at this moment.

That was hard to swallow...Thank God My mom was with me....I cried like a baby in that office.
We knew the cancer was rare and it was a longshot but for a doc to stare at u in the face and say that...wheeew   I couldnt contain myself.
I had to leave when andy was getting his tests so i could collect myself. I try to be as strong as i can for Andy but sometimes i cant control it.

The doc reccomended being here so they could start treating him and getting us as many resources for help as possible.

When me and Andy talked we both knew we needed to be here.
We both felt very comfortable and very well informed before we left that day.
we left with folders of all kind of information and teaching on the chemo pill hell be taking . We did not leave empty handed thats for sure.

We spent the day crying, holding each other,praying and crying.

I know that we made the right choice. And one reason I deleted my facebook was because this is a very crucial time for us and have been hit by negetivity on there from people that we thought were very close to us and didnt want to hear anyone tell us we made the wrong descision.

His cough isnt due to nemonia(i know i spelled it wrong)
its due to cancer progresion...results from Chest scan

Andys blood sugar is high and thats why he is so thirsty all the time and the steroids will make it higher so today I will be finding him a local family doc so that we can monitor it before it gets too bad.

Still believeing God for our miracle....We will never give up our Faith and our Hope!

I have so much more to say but there is a 1 yr old that wants to wake up and play.


Psalms 4:4-6
"Stand before the Lord in awe, and do not sin against him. Lie quietly on your bed in silent meditation.
Put your trust in the Lord,and offer him pleasing sacrifices. Many will say that God you wont help us.Prove them wrong by letting the light of your face shine down upon us.

Were in NJ

So Andy flew out from cincinnati yesterday and I made the road trip with 2 toddlers and a fiesty cat...lol
13 hrs later here we are peppy as ever... 4 redbulls,a vault, and a coffee...hey at least im happy and not tired...lol

Our apt is tomorrow early early so I will keep updating as i get a chance....Right now Andys coughing alot and all around doesnt feel well. He doesnt have pretty much an appetite at all so were substituting with Ensure and he likes it ok....

Love and Prayers,
The Hayes'