Friday, October 8, 2010

Our 1st Doc Appt in NJ

Me,Mom, and especially Andy had a very long day yesterday. We were in Sloans Basking Ridge branch all morning. When we met out nurse we immediately felt a connection. She was very personable and informative. She gave us a lot of information to read up on and look into. We did not leave her empty handed.

Then Doc Gavrilivick came in and was very straight forward with us,He wanted us to know how andgry Andys cancer really is and what we need to prepare for.
They  have decided that Temedor is the best drug option for now because of the brain penetration.
We asked some very scarry questions

Whats andys life expectancy?
Is there a cure?
Whats going to happen?

He was very honest with us and told us Andys Cancer is the worst...agrressive and angry...  and when the cells grow and form tumors they cover the worst possible places they could.
They're hope is that this drug will stop growth and extend his life and if it shrinks ...THATS A BONUS!

but that worst case scenerio hell be gone in 2 months...best case with treatment and all
3-6 months to live...That this cancer was so rare and dosnt usually grow to the places that Andys has grown...so its all experimental at this point...but that the cancer is covering his spine and brain at this moment.

That was hard to swallow...Thank God My mom was with me....I cried like a baby in that office.
We knew the cancer was rare and it was a longshot but for a doc to stare at u in the face and say that...wheeew   I couldnt contain myself.
I had to leave when andy was getting his tests so i could collect myself. I try to be as strong as i can for Andy but sometimes i cant control it.

The doc reccomended being here so they could start treating him and getting us as many resources for help as possible.

When me and Andy talked we both knew we needed to be here.
We both felt very comfortable and very well informed before we left that day.
we left with folders of all kind of information and teaching on the chemo pill hell be taking . We did not leave empty handed thats for sure.

We spent the day crying, holding each other,praying and crying.

I know that we made the right choice. And one reason I deleted my facebook was because this is a very crucial time for us and have been hit by negetivity on there from people that we thought were very close to us and didnt want to hear anyone tell us we made the wrong descision.

His cough isnt due to nemonia(i know i spelled it wrong)
its due to cancer progresion...results from Chest scan

Andys blood sugar is high and thats why he is so thirsty all the time and the steroids will make it higher so today I will be finding him a local family doc so that we can monitor it before it gets too bad.

Still believeing God for our miracle....We will never give up our Faith and our Hope!

I have so much more to say but there is a 1 yr old that wants to wake up and play.


Psalms 4:4-6
"Stand before the Lord in awe, and do not sin against him. Lie quietly on your bed in silent meditation.
Put your trust in the Lord,and offer him pleasing sacrifices. Many will say that God you wont help us.Prove them wrong by letting the light of your face shine down upon us.

14 comments:

Barb said...

hey there kelly...just read the blog and want you to know that I beleive that everything happens for a treason. You are a strong person but its okay to be weak at times esp with what you have going on. As far as people being negative towards your decision, thats all on them. Yoiu have to do what is right for you and your family, and neg comments or feedback is the last thing you need to deal with. If you need anything or want to talk or go get a cup of coffee or something let me know. Sometimes it helps to talk top someone that is not involved. Hang in there girl...xoxo

Unknown said...

Keep us posted!!! Praying, fasting and loving!!!!!!!!!

Lisa said...

Kelly and Andy, You are loved, supported, and prayed for. Kell, I know things are nuts, but keep believing in God. Call if you can.
Lisa

Cupcake Diva said...

Zac and I are praying for you guys Kelly!!! We can't even imagine what you're going through right now, but we serve an awesome God. He is going to see you through this. Hang in there girl. Let us know if you need anything!

anne said...

love you so much kelly! Please email me if you need anything!!! Praying for you every single day.

Brenda C. Boylan said...

Kelly I am praying and I have everyone I know praying. I know God is capable in miracles and it is so amazing that you and Andy are sticking close to Him. I know you and I have never been close and that I don't know Andy but I feel so strongly for you both and for your sweet babies. Please let me know if you need anything.
<3 Brenda

Life In Michigan, the snowy state said...

Wow Kelly, my eyes are so filled with tears for you and Andy I can not even type. I think you are doing the right thing and as far as the people who don't well I'm sorry but SCREW them, it's not about them and their opinion this is about Andy...You...and your two babies. I'm sorry Kelly but the only voice you need to listen to other than Andys is the voice of the Lords when you pray. Please know I'm praying for you and your family, I'm just so sorry. I read somewhere Kell, that GOD does not give you what you can handel but GOD handels what he gives you. GOD BLESS YOU KELLY AND YOUR BRAVE HUSBAND

LOVE AND PRAYERS,
Lori C.

Katie Rose said...

God is holding you all in His hands right now Kelly. I have been praying for you guys a lot this weekend.

Hayes Family said...

Thank everyone for your encouragement...Hanging on to what God has promised in his word!!!
xoxoxo

Danielle & Kurt said...

Kelly -- Thanks for the update. We are praying for you both daily -- for God to heal him and for strength for both of you. Please let us know if we can help back here at your house in any way. There are many of us that are willing to do what is needed, just say the word. Keep us posted and know you are in our thoughts and prayers each morning, evening and throughout the day.

Anonymous said...

Jeff and I continue to have you in our thoughts and prayers daily. We serve an awesome God. Keep trusting in Him. When God moved us back from Colorado, I had a really hard time. I used to think that I needed to be taken care of in a way that God was not exibiting in that time period. I have grown and learned that I need to trust that God is taking care of me the way I need to be taken care of not necessarily the way that I think He needs to care for me. His ways are not our ways but He knows us better than we know ourselves.
Stay strong and rely on Him one day at a time. Don't worry about tomorrow or anyone else (those who ridicule) because God is going to take care of it. You only have to answer for your decisions and if you feel like you are doing the right thing then that is what you have to do.
We love you guys and are with you in praying for that miracle. Let me know if there is anything I can do.
Tricia

Hannah said...

Praying for your family, Kelly. I'm sorry for all that you're enduring. The Lord will carry you! Will you please email me an address were you can receive mail? hannahclement@rocketmail.com. You're not alone! Your brothers and sisters all over the world are praying for you!

Hannah said...

Praying for your family, Kelly. I'm sorry for all that you're enduring. The Lord will carry you! Will you please email me an address were you can receive mail? hannahclement@rocketmail.com. You're not alone! Your brothers and sisters all over the world are praying for you!

Unknown said...

Kelly,
Gina and I are always thinking and praying for Andy, as well as you and your family. I find myself searching for something to say or something to do..anything, to make you feel better....I just want you to know that you & Andy are an inspiration to us! I often wonder what I would do...asking myself, "what would make me feel better?.. Please let me know if there is ANYTHING we can do for you! You and Andy are a true testament to the strength of the Lord. The Lord is not only looking down upon you..I believe HE is holding your hands.. I know you will feel his comfort in the toughest times and I hope you remember that our prayers are always with you.
God bless.
Theron & Gina Jones